Well we are not home yet as we thought we would have been. Bailey was not eating or drinking at the beginning of last week which is what kept us here and as the week went on her counts started dropping drastically (which is to be expected) so our stay was extended. Despite the low counts she has been feeling great and has been full of energy. She makes several trips to the playroom as well as to her friends rooms to play games when they don’t feel up to getting out. She is quite the social butterfly of the pediatrics floor! I must say I love it…her smile and positive energy are very contagious and you can’t help but feel better just being around her.
Our week and weekend was filled with lots of transfusions and preliminary test requirements for Sloan Kettering in New York. Yesterday we did an MRI on her head and an Echo on her heart. We have also sent blood samples and urine samples and next week she will have another bone marrow aspiration which should complete the preliminary requirements for the study. I am still gathering lots of details about what our new treantment in New York will hold so as soon as I know I will fill you all in. I do know that our first trip there will be in approximately two to three weeks and we will be there for a week. During that week she will undergo lots of test then we will be sent home to wait on the results. Please say big prayers for us as we are praying that everything goes according to plan and she will get into the study immediately. This will play a big role in keeping her in remission.
Until then we will look forward to going home and getting to spend some much needed time with family and friends. Thanks again for all the prayers and support!
***Oh I forgot to mention that we will be having a blood drive in Rayne soon (end of August) to benefit Bailey. I will be sure to post all the information on here so we can get as much support as possible!