November 11, 2013….So extremely BLESSED

I have been meaning to update for quite some time now, as we have had alot of exciting things happening, but honestly I have been a little pressed for time with so much going on. As you know Saturday, October 26th, was the big day…Maritime International’s 1st Annual Benefit honoring Bucks for Bailey! AMAZING is all I can say. If you didn’t make it out to the benefit you surely missed out. There was non-stop fun all day long! With over 2,000 people in attendance, music by Cory Landry, Wayne Toups and Geno Delafosse, 27 gumbo cook off teams, 30 Live Auction items, over 50 Silent Auction Items, Raffles, Prizes, Face Painting, Fun Jumps, etc etc…we had a blast!!! Another highlight of the day was an awesome couple, Kevin and Bridget Clause, (that we have become friends with over the years) decided to surprise Bailey with her very own electric scooter! These are the same people that helped me over the summer to get Bailey a scooter during our camping trip.  Let me tell you this isn’t just any scooter…it is PINK and was designed especially for my little girl (see pictures at the end of this post). Her name is plastered on the scooter as well as our favorite saying “Nothing Is Impossible”…it is absolutely perfect! Bailey was so surprised and so moved by their generosity, it took her a few minutes to stop crying and get on her new ride. Let’s just say it didn’t take her long to put her new ride to use…before long she was covering every square inch of Sugar Mill Pond and there was no tracking her down!

On another note, Maritime International’s benefit was not only a fun day for all but was also successful in raising over $135,000 to put in Bailey’s Trust Fund account. To say we are overwhelmed with the generosity of so many people…some we know and some we have never even met….would be the understatement of the century! We are completely blown away that so many people still follow her journey after almost 4 years and new people are continuing to join her journey every single day. I am so blessed to work for such a generous company that has supported our journey from Day 1. We have met so many families that lose their jobs or struggle to make ends meet because of the strain this ugly disease puts on parents due to time spent in the hospital and time away from work. I am so very fortunate to say that losing my job was never a concern. Maritime International has made every effort to make sure Bailey was taken care of first and foremost, and that I was equipped to continue working from wherever we were so I could continue providing her with the care she needed….and now this!  We are definitely prepared to take on whatever plan God has waiting for us. Traveling across the country in search of a cure is one thing, but having to worry about how to pay for these travels is another…thanks to Maritime and everyone who played a part in making the benefit so successful, I no longer have to worry about the monetary part of things for awhile. I am so grateful that I will be able to concentrate on what is really important and that is getting my little girl healed once in for all! So once again thank you thank you thank you to everyone that helped make this happen and especially to Maritime International!!!

On another note, Bailey is feeling great!!! She has been atttending school regularly and enjoying our time at home. We are still having to make trips to the hospital about 3 times a week for blood work and/or transfusions but we are not complaining! On Monday, November 4th we celebrated Bailey’s 11th birthday!!!! Eleven…seriously where does the time go!!! Everyday I am in awe of my little girl, but on her birthday I am even more so reminded that many told us we may never watch her turn 8 years old, much less 11…how is that for the power of prayers and miracles! On the Sunday before her birthday we spent a fabulous lunch at Cheddar’s with our family and she was beyond blessed with lots of gifts and money (which she counts daily and has lots of plans on how it will be used lol!)…she is definitely one loved little girl! On Monday, her actual birthday, I took off of work and took her, along with four of her friends, and Mimi of course, to eat at her favorite hibtachi place and then to the mall! Let’s just say that was quite the adventure. Those 5 girls made us laugh non-stop all day!!! It was so great to watch Bailey just be a kid…she was the birthday girl and those 4 little girls made sure she had a great day! At one point during the day she looked at me and said “Momma I am having so much fun…this is the best day ever”…Let’s just say I had to hold back the tears! Don’t get me wrong, we have alot of great days and they far outweigh the bad days…but not often do we get “normal days”…days where she is just another kid hanging out with her friends at the mall eating dippin dots ice cream, buying jewelry at Clare’s and going fill up bags of candy at the candy store…those are the days we miss. We forget what normal is and how it feels…so I was very grateful for that small reminder and once again reminded how blessed we are to get more days as I know so many who will never get that ever again…and that breaks my heart into a million pieces as much as it fills my heart with gladness that we are still experiencing Heaven on Earth with her.

And in other news…Ellie will definitely be making her debut soon! As a matter of fact I am going into the hospital tonight to begin inducing. This sweet little girl is obviously very comfy in my belly and doesn’t seem to be in a hurry to come out anytime soon. Unfortunately Bailey has chemo scheduled again in two weeks so we need to hurry Ellie along so we can all be ready to travel with Bailey for her treatment. We are all so very excited to meet this sweet baby girl that has already brought our family so much happiness. So stay tuned and I promise to post pictures soon of our sweet Ellie.

As always thank you all for the prayers, support and encouragement you continue to bestow on our family. You will never know how much it means to me to have so many people praying for us and keeping up with our journey. My heart is so full and we are so very blessed! God is sooo very good to us and makes sure all of our needs are met…we are very thankful and grateful for all these blessings, big and small. NOTHING IS IMPOSSIBLE 🙂

Mark 11:23 “For assuredly, I say to you, whoever says to this moutain, ‘Be removed and be cast into the sea,’ and does not doubt in his heart, but believes that those things he says will be done, he will have whatever he says.”

bailey -7621

bailey -7651

bailey -8003